SANDY, Utah — At the Boyle family home in Sandy they have a motto, a phrase that guides Jeremy and Amelia and their six children.
“Amelia says if you have something good, share it,” neighbor Emilie Wright said. “That’s just the hallmark of her life, and so we have something good, and we want to share that with her.”
Over the last year, finding that good has been a challenge. Jeremey, 44, a marriage and family therapist, was diagnosed with a rare and terminal neurodegenerative condition called multiple system atrophy, and his body is shutting down.
“It’s difficult for him to get up and down the stairs, to function like he used to, he’s really active and handy and he’s not able to do that as well as he used to without a lot of pain,” said Wright.
Paying for guidance on how to help the family through the difficult